As people live longer, and better, lives with cystic fibrosis, there are many life transitions, milestones and challenges to manage along the way. We believe it’s important to address all aspects of your health and wellbeing and will support you and your family throughout your changing journey.
We have three field workers who offer support to families with a new diagnosis, and help during the transition from children’s to adult services and throughout adult life. They provide practical help and/or emotional support to individuals, families and carers, offer advice on resources and help with access to essential services.
The field worker team travels throughout New Zealand attending outpatient and inpatient clinics alongside home visits within the community. They have vast experience in the health arena and are aware of the challenges and the impact living with cystic fibrosis has on individuals, children and families.
All our field workers are registered social workers, and information shared with them is confidential and not shared without your permission.
Our field worker team can offer support and advice in dealing with practical issues such as:
We provide grants to support people living with cystic fibrosis, or their parents, guardians, partners, children, family or carers, to meet some of the costs that can arise. These grants can help ease the burden of cystic fibrosis.
Our field workers work with individuals to meet their specific needs. Your field worker will know what options are available to you in your area, will make sure you receive the help you are entitled to and can also act as your advocate when you are dealing with government and community services.Explore financial assistance